News & Views April 2009
www.hearingloss-nyc.org
E-mail:
[email protected]
Hearing Loss Association of America exists to open the world of communication to people with hearing loss through information, education, advocacy, and support. Tuesday, April 21, 2009 5:30 – 7:30 PM (Socializing at 5:30; program begins at 6:00.) New Developments in Hearing Aids SPEAKER: Dr. Joseph Montano, Chief of Audiology and Speech Language Pathology at New York Presbyterian Hospital‐Weill Cornell Medical Center. MEETING LEADER: Anne Pope Location MUHLENBERG LIBRARY BRANCH 209 West 23rd St. (between 7th and 8th Ave., closer to 7th) 3rd floor—elevator available *Taxi looping experiment after the meeting! See page 7 for details!
NOTE: Assistive listening help is provided at our meetings through live CART captioning and a room loop for those whose hearing aids have a T‐coil. Headsets are also available.
Next Month’s Meeting: Tues., May 19, 5:30 PM Title: Assistive Listening Devices Speaker: Josh Gendel
Editor’s Corner – Elizabeth Stump Welcome to the April 2009 issue of the HLAA‐Manhattan News & Views! April is my favorite month of the year. There’s an energizing buzz in the city as the winter that keeps people at home transforms into a springtime enabling us to spend more time outdoors and to appreciate what’s going on around us. Spring fever is at its highest pitch, and that signals that summer is around the corner. In addition to the arrival of spring, there are several cheering pieces of news this month. For one, at our Chapter meeting on April 21st, Dr. Joseph Montano will be speaking to us about the latest developments in hearing aids. Dr. Montano, Chief of Audiology and Speech Language Pathology at New York Presbyterian Hospital‐Weill Cornell Medical Center, is a Chapter advisor, serves on the New York State Licensure Board, and is a member of the ASHA Legislative Council. Another date you should mark in your calendar is April 29th, the 14th Annual International Noise Awareness Day. Read the article on page 4 to learn more about this day and noise pollution. Perhaps it will inspire you to spread the word about too much noise exposure and help others adopt healthier habits such as turning down the volume on equipment. New this month in N&V is the debut of “Ask the Expert!” See page 4 for the question and Dr. Paul E. Hammerschlag’s response. Dr. Hammerschlag is an associate clinical professor of otolaryngology at the NYU School of Medicine, as well as a team captain in last year’s NYC Walk and among the top fundraisers in the country. But please note that in order for this to become a regular column, we need you to submit questions! Please send your queries about hearing loss to me at
[email protected].
2 And last but not least, check out page 6 for the brand‐ new Advocacy Column. Led by Toni Iacolucci, the Chapter has formed a new Advocacy Committee. All members who want to make a difference are invited to join. N&V will feature a regular update on the Advocacy Committee’s goals, current projects, and the results gained. See you at the chapter meeting on April 21st!
LHH College Planning Workshop Calling all high school sophomores and juniors with hearing loss! The League for the Hard of Hearing (LHH) is offering a free workshop to help you select the right college, polish your application, obtain financial aid, and advocate for your accommodation needs. Pre‐registration for this event on May 27 (5:30‐ 8:30 PM) is mandatory. For more information and to register, contact Astrid at
[email protected] or 917‐305‐ 7820. Help the Chapter Go Green! Would you like to receive N&V by e‐mail only rather than receive a mailed version to help us cut down on paper consumption and save money? It costs about $8 a year to provide one member with 10 issues — that’s more than half of one’s annual dues. Please notify
[email protected] if you’d like to make this change. The Chapter thanks you! From Barbara Bryan: “To those who read the paper version of N&V: A paper version is handy to carry around with you and read while traveling, I find. However, I think nothing beats the colored images in the e‐mailed N&V which help to create an overall very uplifting and fun spirit. My solution: I wouldnʹt miss those color images in the e‐mailed version for anything and if Iʹm tired of sitting in front of my computer, I print out what I want to read.”
CHAPTER PLANNING COMMITTEE Join us on the first Tuesday of each month to help plan programs & events. HLAA Manhattan Chapter Phone Number: (voice) (212) 769‐HEAR (4327) Barbara Bryan
[email protected] Barbara Dagen, Newsletter Committee
[email protected] Mary Fredericks, Secretary (212) 674‐9128
[email protected] Joe Gordon
[email protected] Toni Iacolucci, NYC Walk4Hearing Co‐chair
[email protected] Shera Katz, Web Site Coordinator
[email protected] Anne Pope, Immediate Past President, HLAA Board of Trustees; NYC Walk4Hearing Co‐chair
[email protected] Ellen Semel (212) 989‐0624
[email protected] Susan Shapiro, Treasurer
[email protected] Dana Simon
[email protected] Elizabeth Stump, Newsletter Editor
[email protected] Diane Sussman
[email protected] Advisory Members Amy McCarthy Lois O’Neill Robin Sacharoff Professional Advisors: Josh Gendel, Technical Director, League for the Hard of Hearing (LHH) Laurie Hanin, PhD, CCC‐A Exec. Director, LHH Joseph Montano, Ed.D., Director, Hearing & Speech, Weill Cornell Medical College
3 WHAT YOU MISSED IN MARCH
Usually we have “outside” guest speakers, but this month we were happy to welcome our own Joseph Gordon and Shera Katz who spoke about Captions: Past, Present and Future. Here are some excerpts: Join the Theatre Development Fundʹs Accessibility Programs (TAP) — once a member you will learn when a Broadway show has an open captioned performance. It’s a wonderful experience to be able to see, hear and read a play all at the same time. Joe’s advocacy work resulted in nine movie chains, 38 theatres, agreeing to show captioned movies in NYS. Joe talked about two types of captioned movies. One is open captions, where the captions are right on the movie film just like subtitles for foreign movies. The second is called Rear Window Captions, in which an acrylic panel is used. Joe brought one in for all of us to see. It attaches to the cup holder on your seat and allows you to personally view the captions while others in the audience can view the movie as usual. The panel catches the reflection of the captions shown on the back wall. Go to the movies when the theatres are offering captioned movies. Because we have a right to captions on TV, make sure you complain to your cable provider about TV CC problems. It’s important to be an active advocate when things are going well and when things are not going so well. Being active is the key to our being able to have access to technology. Shera spoke about three common causes of CC problems: poor set top box (STB) design, poor TV design and cable design. Some STBs have hidden menus for CC. For some models, one way to find them is to turn the STB off while leaving it plugged in and the TV turned on. Press the menu button and the hidden menus will appear. The FCC requires all TVs to decode CC from television transmissions, but does not require them to decode CC passed through by media players. Some new TVs are not decoding CC passed through by analog (older) media players, even though they have both the digital and analog TV tuners built in and
could do so. To be able to continue to watch your old DVDs, make sure before you buy it that your new TV will decode captions from media players that use the older type of cables. There are different types of cables to use in connecting a TV to a STB or a DVD player. HDMI, a relatively new type of cable, will not pass through CC data. Consider using component cables instead which will provide a high definition experience. The Coalition of Organizations for Accessible Technology (COAT) was formed to help make sure that people with disabilities are not left behind as technology changes. COAT has a petition to support the 21st Century Communications and Video Act that will help federal laws catch up with technology changes: www.coataccess.org/node/add/petition.
Our condolences to the families of Paula Brown Glick (long‐time member); and Harry Sussman (father of member Diane Sussman).
Metropolitan Calendar
Tuesday, April 21: HLAA Chapter Meeting Wednesday, April 29: 14th Annual International Noise Awareness Day Thursday, April 30: LHH Comedy Night at Comix Comedy Club (7:30 show, $60 admission; contact
[email protected] or 917‐305‐7804 to RSVP) Tuesday, May 19: HLAA Chapter Meeting Thursday, May 28: LHH Cochlear Implant Support Group at the League for the Hard of Hearing 50 Broadway, 2nd Floor; 5:30pm to 7pm *For more information, call 917‐305‐7751 or e‐mail
[email protected]. *Register for the annual national convention — and HLAA’s 30th birthday — occurring June 18‐21, 2009,
4 in Nashville, Tennessee. Go to www.hearingloss.org/convention. *The workshop and event schedule is now online!
Book Corner: This month promises a new release of Hearing Aids: The First 30 Days, by Jess Dancer, EdD, professor emeritus of audiology at the University of Arkansas at Little Rock. The instructional book offers new hearing aid wearers insights and guidance to make it through the first 30 days of wearing their hearing aid. (From Auricle Ink Publishers)
Also being released in April is the third edition of The Consumer Handbook on Hearing Loss and Hearing Aids: A Bridge to Healing, edited by Richard E. Carmen, AuD. Some of the book’s chapters have been retired and others have been revised and updated as a result of technological advances since the last edition’s publication in 2004. New chapters cover telecoils, wireless assistive listening devices, and tinnitus. View excerpts at www.hearingproblems.com. Discounts are available by calling (928) 284‐0860 for a catalog or more information. Ask the Expert! Q.: Iʹm concerned every time I read something about ototoxic drugs. Could chemotherapy drugs I took in the past have caused or contributed to my hearing loss? A. Ototoxicity generically refers to toxic effects on the auditory and/or vestibular system. The only way to investigate the possibility of chemotherapeutic agents contributing to your hearing loss is to ask your physician the names of these medications and if ototoxicity is associated with their use. Ototoxicity of specific medications frequently can be found online
(Google) with the name of the medication crossed referenced with “ototoxicity.” Your physician can help you determine if your online information about the ototoxic potential for a given medication is pertinent to your hearing loss. While we are aware that the more commonly administered platinum compounds, cisplatin and carboplatin, are ototoxic, there are other chemotherapuetic agents that are potentially ototoxic. Currently, in the U.S., the only other marketed ototoxic chemotherapy drugs are nitrogen mustard, alpha‐difluoromethyl ornithine (DFMO), vincristine, and vinblastine sulfate; for these groups, animal ototoxicity data is sparse, and audiovestibular records (hearing and balance tests) of human ototoxicity are not available from most clinical trials. Current and future clinical trials of ʺexperimentalʺ chemotherapy agents should include audiovestibular monitoring. If you’re being treated with known ototoxic drugs, speak to your doctor and have your hearing tested regularly. —Paul E. Hammerschlag, MD
14th International Noise Awareness Day – Wednesday, April 29, 2009 By Susan Immergut Is noise the new tobacco? Remember in the not‐so‐ distant past when everyone smoked and no one thought that it might cause a health problem? Later we learned that there was a direct connection between smoking and lung cancer and other diseases. Today as the world gets louder, we need to educate people about the damaging effects of noise — because noise is everywhere! Did you know that noise is the number one complaint on NYCʹs 311 citizenʹs hotline? Or that riding the NYC subway will cause hearing loss over time? Since hearing loss is
5 painless and the early stages of hearing loss are difficult to detect, most people don’t realize they’re damaging their hearing until it’s too late. Noise‐induced hearing loss can be caused from a short exposure to a very loud sound and/or to exposure to a moderate level noise over a long period of time. The louder the noise, the less time it takes for permanent damage to occur. Loud noise is a major cause of hearing loss and is widespread among baby boomers, who were the first generation exposed to rock & roll music. Although aging is another major cause of hearing loss, many experts attribute much of the hearing deficit in baby boomers and the elderly to the cumulative effect of loud noise. Also worrisome is the growing incidence of noise‐ induced hearing loss in children and teenagers, caused by iPods, video games, and loud music exposure, among other sources. (One good step toward mitigating damage is the parental control on iPods that locks the sound to a maximum decibel, thereby protecting hearing.) Remember: Once hearing is lost, it is lost forever! In addition to being deleterious to hearing, loud noise reduces quality of life and has adverse effects on learning and physical and mental health. For those of you who already have noise‐related hearing loss, attention should be given to conserving residual hearing by wearing ear protection (earplugs, ear muffs) and avoiding harmful noise (don’t attend rock concerts). International Noise Awareness Day was started by the League for the Hard of Hearing (LHH) in 1995. As in the past, this year LHH will have its Mobile Audiology Unit at City Hall and offer free hearing screenings, distribute hearing protection, and disseminate information on ways to protect your hearing and live a quieter life. For more information on the detrimental effects of noise and International Noise Awareness Day, visit the Noise Center on the LHH Web site (www.lhh.org/noise/index.html).
Hearing Loss Facts from the Sight & Hearing Association (www.sightandhearing.org): *The higher frequencies are the first frequencies to be affected in hearing loss — soft speech sounds such as P, F, T, and TH. *To know if a sound is loud enough to cause damage to your ears, it is important to know the length of exposure and the level of intensity (measured in decibels). These are signs that a noise is too loud: 1. Your ears ring or feel dull. 2. You need to raise your voice to be heard. The background sound is too loud if you can’t speak in a normal voice to someone at arm’s length. 3. You can hear music from another person’s headphones. Hearing and Eye Disorders According to a report in the February issue of Archives of Otolaryngology‐Head & Neck Surgery, an estimated 20% of children with sensorineural hearing loss also have ocular (eye) disorders. 21.7% of the children with sensorineural hearing loss in the study by Arun Sharma, M.D., of the University of Washington, Seattle, had an ophthalmologic abnormality (including nearsightedness, farsightedness, and astigmatism). Between one and three out of every 1,000 children have some degree of sensorineural hearing loss (resulting from damage to the inner ear or auditory nerves). Half of these cases come from environmental causes, while half result from genetic causes. Sensorineural hearing loss is linked to delays in cognitive, speech, language, and social development, particularly early in life, according to the study. Children with hearing loss are dependent on alternative means (other than auditory) of acquiring information, so children with both hearing and vision limitations are particularly at risk for abnormal development. All children with hearing loss should be evaluated by hearing and vision experts while they are young in order to get appropriate treatment. CI Surgery Deemed Safe for the Elderly A new study published in the February issue of The Laryngoscope shows that healthy, elderly patients who undergo the surgical procedure to receive cochlear implants (CIs) generally tolerate the anesthesia well,
6 and do not face long‐term risks related to the anesthesia or surgery. The fact that elderly patients undergoing cochlear implantation are not too fragile for the surgery or implantation disproves conventional medical wisdom, said study co‐author Anil Lalwani, M.D., and his NYU Langone Medical Center colleagues. (Dr. Lalwani was the speaker at our Chapter’s January meeting.) Many hearing‐ impaired elderly people do not receive CIs, which could greatly improve hearing and quality of life, because of concerns regarding anesthesia effects. The researchers concluded that any pre‐existing medical condition is a better predictor of intraoperative (during surgery) and postoperative (after surgery) complication than age alone. As a result of the study, they said, seniors with hearing loss who qualify for a CI should consult with their doctor and give serious consideration to the procedure. Codeine and Ototoxicity Individuals who use codeine regularly are at risk for partial or total deafness, according to a 2008 Australian study. Only a small minority are affected, but the deafness happens suddenly and permanently. The World Health Organization says that codeine is one of the most commonly used drugs (taken for pain, diarrhea, and irritable bowel syndrome, among other conditions), so many people are potentially at risk for hearing loss from its regular use. Even taking codeine at the recommended doses from one to four years could bring on total deafness, although this is in extreme cases. The study confirms what Brian Blakely, MD, a professor at the University of Manitoba, reported in 2005 — that a serious side effect of the common painkiller is hearing loss. Dr. Blakely, also a spokesman for the American Academy of Otolaryngology‐Head and Neck Surgery, said that hearing damage can stem from some types of antibiotics, chemotherapy drugs, and opioid medications, including combinations of Tylenol and codeine.
Does Your Doll Wear Hearing Aids? It’s no secret that most young girls enjoy playing with dolls. Even better when the doll looks like the owner! For years American Girl has capitalized on this trend by offering 14‐ to 18‐inch tall dolls of young girls from various historical periods as well as “personalized dolls” that resemble your child from our modern era. (Here in NYC, with the American Girl store on 5th Ave., you’ve probably noticed an 8‐ year‐old carrying around her “mini‐me” more than once.) Yet among all the accessories the company sells, hearing aids don’t make the list — a disappointment for young girls who wear them. The good news is that a handful of other doll/toy companies do sell dolls with these devices. Visit: www.thingamababy.com/baby/2007/07/disability.ht ml; www.listen‐up.org/haid/dolls.htm; www.mytwinn.com/genProduct.html/PID/4835528/c tid/17; www.flaghouse.com/Just‐Like‐Me‐Doll‐ Accessories‐Hearing‐Aids‐item‐ 39563&srccode=117242; www.justbekuz.com/Mr_BTE_hearing_aid_doll.ht m; www.lakeshorelearning.com/home/home.jsp. Your child just may be more accepting of her hearing loss and her need to wear hearing aids if her doll has one too. Advocacy Committee The newly formed Advocacy Committee (AC) needs your help! We already have many issues to work on—but what we really need are members who are willing to roll up their sleeves and get involved. Even if you don’t know anything yet about advocacy, don’t let that deter you from joining, because the AC will be a supportive and educational group. Advocacy isnʹt difficult, but you do need determination and willingness to stay the course. Weʹve set up a Gmail account (which Toni Iacolucci will be managing for now), so please e‐mail if you would like to participate:
[email protected].
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Access to the Arts in New York City
OPEN‐CAPTIONED THEATER ‐ Find captioned theater listings nationwide on www.c2net.org Theater Access Project (TAP) captions Broadway and Off‐Broadway productions each month. Tickets are discounted. For listings & application www.tdf.org/tap or 212‐221‐1103, 212‐719‐45377 (TTY) *Upcoming OPEN‐CAPTIONED Shows: [Must register/order with TAP for tickets] Reasons To Be Pretty (4/14, 7 PM); Exit the King (4/22, 2 PM); Impressionism (4/30, 8 PM); Mamma Mia! (5/23, 2 PM); Accent on Youth (5/30, 2 PM)
OPEN‐CAPTIONED MOVIES – For updated listings, go to www.insightcinema.org/links.html or www.regalcinemas.com/movies/open_cap.html REGAL BATTERY PARK STADIUM 11,102 N. End Avenue–Vesey & West Streets (212) 945‐4370. REGAL–UA KAUFMAN STUDIOS CINEMA 14, 35th Ave. & 38th St., Long Island City (718) 786‐1722. REGAL–UA SHEEPSHEAD BAY‐BROOKLYN, Knapp St & Harkness Ave (718) 615‐1053. REAR‐WINDOW CAPTIONED MOVIES ‐ For listings go to www.FOMDI.com. Ask for a special window when buying your ticket. The window reflects the text that’s shown on the rear of the theater. AMC Empire on 42nd Street. (212) 398‐2597, call Tues. afternoon for next week’s schedule. Clearview Chelsea Cinemas, 260 W. 23rd St., Auditorium 4, 212‐691‐5519 www.clearviewcinemas.com/tripod.shtml The Bronx: AMC Cinema Bay Plaza, 718‐320‐1659. MUSEUMS WITH CAPTIONED EVENTS & ASSISTIVE DEVICES ‐ The Metropolitan Museum of Art, 1000 Fifth Ave. 212‐879‐5500 Ext. 3561 (V), 212‐570‐3828 (TTY) Real‐Time Captioning of lectures upon request – This service requires at least three weeks notice. Gallery Talk with ALDs (meet at gallery talk station, Great Hall) Free Samples! Energizer is giving away free samples of its hearing aid batteries so users can try the new perforated pack. The tabs on the batteries have also been made wider and longer. Samples are available for sizes 10, 13, 312, and 675. To order, call 866‐449‐ EARS or go online to: http://offers.energizer.c om/perfpack/
HLAA Social Network & Web Chats Check out the online community from HLAA to connect with others who have hearing loss. Visit: http://myhearingloss.org. Upcoming Expert Chat: April 23, 7 PM, with Jane R. Madell, PhD, on how to decide to move from hearing aids to cochlear implants. Go here to submit questions: www.hearingloss.org/Community/as kExpert.asp Cochlear Implant Chat: Every Monday night, 8 PM
Regular Chat: Every Wed. night, 9 PM
Taxi Looping Once again we will have the opportunity to test an induction loop in taxis after our April 21st meeting. If you have not already tested the induction loop, please go down the block a bit toward 8th Avenue right on West 23rd Street and you will see taxis waiting with a sign about an induction loop. Take a minute to test out the loop with your hearing aid/cochlear implant on t‐coil. Be sure to take a return postcard on which you can evaluate your experience, and remember to mail the postcard the next day.
Mention of suppliers or devices in this newsletter does not mean HLAA‐Manhattan endorsement, nor does exclusion suggest disapproval.
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c/o Barbara Dagen, 141 E. 33rd St. (3B) New York, NY 10016
FIRST CLASS MAIL (DATED MATERIAL)
Please check your address label for the date of your last dues payment and, if you are a National member, there will be an “NM” after the date. Report any discrepancies to Mary Fredericks. Thanks! Manhattan Chapter Annual Membership Application
Please complete and return this form, with your chapter dues of $15 (payable to HLAA-Manhattan) for the period September 1, 2008, to August 31, 2009 Send to: Mary Fredericks 520 East 20th St. (8E) New York, NY 10009
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HLAA is a volunteer association of hard of hearing people, their relatives and friends. It is a nonprofit, non-sectarian educational organization devoted to the welfare and interests of those who cannot hear well. Your contribution is tax deductible to the extent allowable by law. We are a 501(c)(3) organization.