Tektic Workshop Program Final

TEKTIC WORKSHOP 2009

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FOREWORD

This workshop was brought to you by the partnership of the following institutions:

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“ICT 4 HPE” Illustration by Nelson Shen

Dear Participant: On behalf of the Technology Enabled Knowledge Translation Investigative Centre (TEKTIC) research team, we would like to welcome you to our invitational forum “Using Information and Communication Technologies for ‘Healthy’ Patient Engagement.” We would like to also recognize our appreciation for the Michael Smith Foundation who has supported TEKTIC through their Infrastructure Program since 2006. This ongoing support has given our research team the opportunity to conduct innovative eHealth research in the areas of eLearning and evidence based policy translation. More importantly, TEKTIC has enabled our group carry out various knowledge exchange activities and share ideas, all of which supports the continuous co-creation of many exciting research initiatives. The theme of today’s workshop is an important and timely one to explore, and we appreciate your interest in joining us in this dialogue. We look forward to interacting with you not only today at the forum, but also in the future in an effort to continue optimizing health care and outcomes through active patient engagement, excellence in health service delivery, and acceleration of translated research evidence into routine care— all enabled by the ongoing advances in information and communication technologies. Sincerely,

Kendall Ho, MD FRCPC Executive Director, TEKTIC Associate Professor, Emergency Medicine Faculty of Medicine University of British Columbia Tel:+1.604.875.4111 ext 69153 Fax: +1.604.875.5083 e-mail: [email protected]

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GUEST SPEAKERS Preamble:

Ms. Mary Martin, Councillor, Surrey City Council Since her election to Surrey City Council in 2005, Councillor Mary Martin has worked hard to bring Surrey’s diverse community together. Councillor Martin is dedicated to ensuring the adequate and proper care of City residents, and has used her 20 years of experience in the medical field to lead highly successful fundraising campaigns for hospital foundations. Councillor Martin’s involvement in community work began while raising her three children. She has served as Co-Chair of the first PAC at Brookside Elementary in Newton, as Chair of the Parish Education Committee Board at Cloverdale Catholic School, and as Secretary and Treasurer of Kids Help Phone, which she helped launch in South Surrey/White Rock.

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Councillor Martin is currently an appointed member of the following City of Surrey committees: Finance, Public Safety, Parks and Community Services Committee (Chair), Multicultural Advisory Committee (Deputy Chair), Mayor’s Committee on Health Care (Chair), Mayor's Committee on Arts and Culture, and Mayor's Committee Crime Reduction Working Group. In addition, Councillor Martin has been appointed to the following community organizations: Semiahmoo House Society (Board Member), City Liaison of Surrey Memorial Hospital Foundation, Representative of the Fraser Health/Municipal Government Advisory Council, Peace Arch Hospital Foundation - City Liaison, and Honorary Board Member of the Surrey Hospice Society Councillor Martin serves as an Alternate on the Metro Vancouver Board of Directors. As a Surrey resident for the past 18 years, Councillor Martin, her husband Tony and family feel blessed to live in such a beautiful, dynamic city and believe that community service is the key to building any great city. Councillor Martin is a member of the Surrey First Coalition.

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Speaker #1 !

Dr. Antoine Geissbuhler,

Professor and Chairman, Deparment of Radiology and Medical Informatics, Geneva University Hospitals Antoine Geissbuhler is a Professor of Medical Informatics, Chairman of the Department of Radiology and Medical Informatics at Geneva University, Director of the Division of Medical Informatics at Geneva University Hospitals, and President of the Health-On-the-Net Foundation. He is also President-elect of the International Medical Informatics Association and member of the HIMSS Europe Governing Council.

A Philips European Young Scientist first award laureate, he graduated from Geneva University School of Medicine in 1991 and received his doctorate for work on tri-dimensional reconstruction of positron emission tomography images. He then specialized in internal medicine under the direction of Prof. Francis Waldvogel. After a post-doctoral fellowship in medical informatics at the University of Pittsburgh and Vanderbilt University, he became associate professor of biomedical informatics and vice-chairman of the Division of Biomedical Informatics at Vanderbilt University Medical Center, under the mentorship of Prof. Randolph Miller and Prof. William Stead, working primarily on the development of clinical information systems and knowledge-management tools. In 1999, he returned to Geneva to head the Medical Informatics Service in Geneva University Hospitals and School of Medicine, following in the steps of Prof. Jean-Raoul Scherrer who founded this world-renowned group. In 2005, his efforts in developing telemedicine and tele-education were recognized by the creation of the UNESCO chair for telemedicine and multidisciplinary teaching. Author of more than 100 original scientific publications in peer-reviewed scientific journals, his current research focuses on the development of innovative, knowledge-enabled information systems and computer-based tools for improving the quality, safety and efficiency of care processes, at the local level of the hospital, the regional level of a community healthcare informatics network, and at the global level with the Health-On-the-Net Foundation (http://www.hon.ch) and with the development of a south-south telemedicine network in Africa (http://raft.hcuge. ch). He is the President-elect of the International Medical Informatics Association and is one of the editors of the International Journal of Medical Informatics and of the IMIA Yearbook of Medical Informatics.

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Speaker #2

Dr. Cameron Norman

Assistant Professor, Department of Public Health Science, University of Toronto Director of Evaluation, Peter A. Silverman Global eHealth Program Cameron Norman is an Assistant Professor in the Department of Public Health Sciences at the University of Toronto, Director of Evaluation with the Peter A. Silverman Global eHealth Program, and the principal investigator of Youth Voices Research, the youth engagement unit of the Centre for Health Promotion.

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The focus of his research is on understanding how people work together across boundaries to solve health problems and how information technologies can aid learning and collaboration across time, physical space, social status, and culture to improve health and wellbeing. His research places emphasis on engaging youth and young adults in health promotion; exploration of the necessary skills and organizational supports required for the public and professionals alike to fully participate in health decisions using information technology (eHealth); and how electronic social networks connect people -professionals and patients alike - and ideas together to translate knowledge into improved wellbeing for all. Dr Norman holds undergraduate and Master’s degrees in psychology, a PhD in public health sciences from the University of Toronto and completed a post-doctoral fellowship in Systems Thinking and Knowledge Translation jointly at the University of British Columbia in Vancouver and the Centre for Global eHealth Innovation in Toronto.

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Speaker #3

Dr. Gerri Sinclair

CEO and Executive Director of Digital Media Program, Centre for Digital Media Gerri Sinclair is currently the Executive Director of the Masters of Digital Media Program, as well as the CEO of the Centre for Digital Media, a collaborative partnership between the University of B.C., Simon Fraser University, Emily Carr Institute of Art + Design, and the B.C. Institute of Technology. Most recently she was the Chair of the Canadian Federal Government’s Telecom Policy Review Panel, advising the Federal Government on the future policy and regulatory environment required to support an advanced telecommunications framework. She was also the General Manager of MSN Canada and a senior member of the Microsoft executive team, as well as the founder and CEO of NCompass Labs, an Internet content management company acquired by Microsoft in 2001. A former visiting scientist at IBM Research, Dr. Sinclair was also the president of the British Columbia Government Premier’s Technology Council, and the founding director of the ExCITE lab at Simon Fraser University, the first multimedia educational technology centre in Canada. She has served on several government and corporate boards including Telus Corporation and BC Telecom, and is currently a director of the Toronto Stock Exchange, Ballard Power, and the Canadian Social Sciences and Humanities Research Council. She is the recipient of the YWCA Woman of Distinction award, the Canadian Women in Communications’ Woman of the Year award, the Canadian Women in New Media Pioneer award, the Influential Woman in Business award, the Sarah Kirke award for the most outstanding Canadian woman in High Tech, the 2005 Canadian Consumer Choice Award for Business Woman of the Year, and most recently the 2008 Canadian Public Policy Forum Testimonial Award. She holds a Ph.D. in Renaissance drama as well as an honorary Doctor of Science in Computer Science from the University of British Columbia.

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C Speaker #4

TELUS

Representative from Telus Health Solutions, Telus

TELUS Health Solutions – backed by Emergis, have a simple promise: to help lead the change in Canadian healthcare through innovative and proven information communication technology (ICT). We have years of expertise in successfully implementing healthcare applications and ICT processes through our industry leading consulting services for customers across Canada and around the world. Our solutions are backed by over 1,000 team members, including clinicians. We power hospital-to-home technology solutions that are shifting healthcare’s focus from remediation to prevention. Our robust wireless and wireline networks and data centres span the country. We facilitate collaboration between caregivers through secure, timely and reliable data transmission, including electronic health records for five million Canadians. We can connect health professionals with patient records at the point of care, so that practitioners of every description can instantly access everything they need to know about the patient they’re treating for better decision making and improved outcomes. By optimizing the efficiency of caregivers with our pharmacy solutions, we’re helping pharmacists across Canada better manage every aspect of their operations, including, most critically, access to essential drug and medical information. In doing so, we add capacity and capability to the Canadian healthcare system. We provide leading claims management solutions for private group insurers and public government payers. With strategic initiatives like our multi-benefit claims management solution, we continue to invest in areas that increase the value of our offerings to existing insurance company customers and help them to attract new ones. In January 2008, TELUS demonstrated its strategic commitment to healthcare with the acquisition of Emergis. By coming together and taking a unified brand approach, as TELUS Health Solutions, we are able to marry the highly effective complementary expertise of both teams. At TELUS Health Solutions, we help you use information for life.

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COMMENTS FROM DR. SCOTT TEKTIC is familiar with the need for involvement of individuals and communities in decision-making processes, and several TEKTIC members already research or actively practice various aspects of public engagement. Mid-morning we will have an opportunity to learn from several TEKTIC researchers and their colleagues. Michal Fedeles will explain how actually involving patients early in the process of ICT implementation, helping them understand how ICTs are – or could be – used, can be empowering and lead to the public becoming advocates for appropriate technology use. Sandra JarvisSelinger will describe research that is helping to understand the respectful processes and active participation needed to introduce Community Learning Centres into Aboriginal and First Nations communities to promote community health, and to then assess their impact. This session will close with Kendall Ho Helen Novak Lauscher showcasing how TEKTIC was able to contribute to an extension of an existing study (iCON – Chinese On-Line Health Network) through actively engaging the local Chinese community in the design of a personal health record portal, while learning important lessons about the value and generalisability of this approach. We will conclude the workshop with a facilitated discussion. The workshop used the term ‘healthy engagement’ as a deliberate double entendre – we wish to engage the public around ‘healthy’ related issues, and to have a positive outcome we need the engagement itself to be ‘healthy’. While we can – and are – learning from other settings, we need a collective understanding of answers to “who, why, what, where, when …. and how”. To do this, the tables will be turned. Questions will be asked of the audience to tease out the answers. Your participation in the workshop begins to answer ‘who’, and the experts will have explained ‘why’. But ‘what’ do we wish to achieve, ‘where’ are we headed, ‘when’ do we need to get there, and most importantly ‘how’ are we going to do this? So many questions come to mind. Do we need or want to engage everyone, or do we need to focus on aging baby-boomers or perhaps Generation Y? (“Generation Y”, the largest generation since the boomers, are growing rapidly; by 2014 - just 5 years from now - there will be nearly 63M Generation Y employees in the workforce, while the number of baby boomers will drop to less than 48M). And when we embark on ‘healthy engagement’ with the public - just how much do we tell? (Too little and we are considered patronising or to be hiding something; but too much and we are likely to confuse; staged engagement may sound tempting, but that becomes complex and costly.) Tempting though such questions are, we will focus instead on creating a roadmap to guide our journey to healthy public engagement, seeking to identify key ‘signs’ to guide, roadblocks to avoid, and perhaps opportunities to travel paths less trod!

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PATIENT ENGAGEMENT PROJECTS TEKTIC Project #1:

Engaging Patients and the Community: (e)Literacy for Better Health Presenters: Dr. Michal Fedeles & Katherine Wisener

Information and communication technologies (ICT) play a crucial role in facilitating quality health care, education, and research. The first two phases of this project are comprised of: (1) a needs assessment with the public to understand their technical literacy around health; (2) three interactive sessions providing participants with resources and training on how to search for health information online. Phase three builds upon the model developed from the first two phases and extends its reach to Aboriginal communities. It will focus on applying the interactive sessions to community-based health professionals, non-health professionals and research leads, who can then build capacity in their communities by making

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information available to community members. We hope that these sessions will enhance the public’s digital literacy in both urban and rural settings, ultimately contributing to health and well-being.

TEKTIC Project #2:

Community Learning Centres (CLC) Presenter: Dr. Sandra Jarvis-Selinger

The Ktunaxa Community Learning Centres (KCLC) project is a three year CIHR funded initiative that evaluates the design and implementation of four Community Learning Centres (CLC) in British Columbia’s Ktunaxa Nation. Each CLC was created to provide community members and community health professionals with culturally relevant health information and resources. Community-based research and technical personnel currently support day-to-day operations, create and connect

with health resources, and collect/analyze outcome and process data at each learning centre. Funding from TEKTIC has enabled CLC to expand to new Aboriginal communities and has also allowed researchers to host other community engagement events such as the KCLC Music Workshop.

TEKTIC Project #3:

Public Engagement with Multicultural Communities via Multimedia Channels Presenters: Dr. Kendall Ho & Dr. Helen Novak Lauscher

Intercultural Online Health Network (iCON) is a community-engaged project, focused on health education in multicultural communities in Greater Vancouver. The aim of the iCON project is to improve the knowledge, attitude and skills within BC’s Chinese- and Punjabi-speaking

population to optimize selfcare in the management and prevention of chronic diseases through an innovative and interactive patient health informatics solution. This initiative is conducted through a multi-stage and multi-channel engagement strategy via public forums and interactive websites. Through these channels, culturally relevant, linguistically appropriate patient-centred educational materials are codeveloped with community and are disseminated to patients. Through support from TEKTIC, additional investigation into integrating technologies into healthcare from a patient perspective have been conducted. These technologies include personal health records and Web 2.0 applications.

About our Presenters: Dr. Michal Fedeles is the Director of Continuing Health Education and Adjunct Professor

of Health Sciences at Simon Fraser University. He also serves as facilitator and trainer with the UBC Centre for Teaching and Academic Growth and as educational consultant (Six Interactions). Katherine Wisener is a Researcher with the eHealth Strategy Office within the Faculty of Medicine at UBC. Her research interests include program evaluation, communitybased research, childhood development, and technology. Dr. Sandra Jarvis-Selinger is the Associate Director of Education at the eHealth Strategy Office and an Assistant Professor in the Department of Surgery with the Faculty of Medicine at UBC. In 2008, Sandra was the recipient of the Michael Smith Foundation of Health Research Career Investigator Award. She is also the nominated principal investigator of a Canadian Institutes of Health Research three-year grant to explore the development and

implementation of a research project entitled ‘Community Learning Centres: A Model of Community Engagement in Health, Education and Training”. Dr. Kendall Ho is the Executive Director of the TEKTIC. He is also the founding Director of the eHealth Strategy Office within the Faculty of Medicine at UBC and a practicing emergency medicine specialist at Vancouver General Hospital. Dr. Helen Novak Lauscher is the Assistant Director of Research in the eHealth Strategy Office within the Faculty of Medicine at University of British Columbia. Her work at the eHealth Strategy Office involves leading an interdisciplinary research team working on projects in the areas of technology-enabled knowledge translation in health professional practice and education, participatory community-based health research, and program evaluation.

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ABOUT US

The Technology Enabled Knowledge Translation Investigative Centre (TEKTIC) is a collaborative group supported by the Research Unit Infrastructure Award granted by the Michael Smith Foundation for Health Research (MSFHR) in 2006. Members include researchers, clinicians, academics, decision makers, information technology specialists and trainees from various institutions and organizations. TEKTIC began with 16 original members from 5 different institutions. The team has now grown to include over 25 members representing 8 different organizations TEKTIC seeks to understand, explore and innovate on how ICTs used within a healthcare

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setting – known as eHealth – can be used most effectively, and accelerate the translation of health research evidence into routine health care practice and implementation into the health system. Through on going exploration in five key research theme areas (human technology interface; technology demonstration, research synchronization, evidence based policy translation; and capacity building), TEKTIC will be able to assist in providing best practices for sustainability of the integration of technologies in health care contexts and building caring relationships.

MEMBERS

TEKTIC’s members represent a diversity of perspectives and professional training. Each individual brings expertise and experience that affords the unit a strong human infrastructure to be successful in its activities.

MISSION AND VISION

The mission of TEKTIC is to understand, explore, and innovate on how information

and communication technologies (ICT) can be used effectively to accelerate the translation of health research evidence into routine practice and health system implementation.

OBJECTIVES AND RESEARCH FOCUS

Through ongoing research grounded in five key objectives, TEKTIC explores the potential of technology-enabled solutions for health systems, education, and knowledge translation. The founding objectives of TEKTIC are: Objective 1: Human-technology interface - usability and data visualization - to examine the interface between humans and technological tools to optimize ICT integration in healthcare contexts. Objective 2: Technology demonstration - to design, develop, and evaluate information technologies intended to enhance clinical practice.

Objective 3: Research synchronization for effective knowledge dissemination and change management - to understand and coordinate efforts towards effective systemsbased knowledge translation. Objective 4: eHealth evidence based policy translation - to assist health policy makers in incorporating eHealth evidence into policy innovation. Objective 5: Capacity building to nurture existing and emerging researchers interested in the exploration of ICT in promoting knowledge translation. Currently there are 34 projects within TEKTIC’s research portfolio. Each individual researcher project cuts across five research objectives differently. Sub-themes that have emerged in TEKTIC’s work include: public engagement, Aboriginal health, health literacy, interprofessional education and practice, electronic communities of practice, innovations in medical school curriculum, professional development, and global health.

KNOWLEDGE TRANSLATION AND DISSEMINATION ACTIVITIES

TEKTIC has a responsibility to promote knowledge exchange between fellow academic researchers, health professionals, policy- and decision makers, and the public. Knowledge sharing and dissemination of research activities within TEKTIC occur at both a project and unit level. Research project dissemination activities include public forums, eCommunities of Practice and websites. Unit dissemination activities include the TEKTIC Elluminate Sessions* and The TICr* - our monthly online knowledge sharing series and our monthly eMagazine.

FUTURE DIRECTIONS

TEKTIC has achieved early success in the emerging and rapidly evolving field of technology-enabled knowledge translation. We have taken advantage of opportunities for interdisciplinary collaboration which has solidified the process and enriched the outcomes. We are determined to build on this success and continue to generate significant contributions to BC’s health research by designing, evaluating, and advocating ground breaking technologyenabled solutions for achieving excellence in our health system. * External partners are welcome to join the Elluminate sessions and subscribe to the TICr. For more information please visit www.TEKTIC.ca or email Jennifer Cordeiro at [email protected] .

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TEKTIC MEMBERS Founding Members Kendall Ho, TEKTIC Executive Director Director, eHealth Strategy Office, UBC Assistant Professor, Division of Emergency Medicine, Vancouver General Hospital Lesley Bainbridge, Director, Interprofessional Education, Faculty of Medicine, UBC Michal Fedeles, Director, Continuing Health Education, Simon Fraser University Sandra Jarvis-Selinger, Assistant Professor, Department of Surgery, UBC Associate Director of Education, eHealth Strategy Office, UBC Harry Karlinsky, Clinical Professor and Medical Director, BC Physician Integration Programs, Continuing Professional Development, UBC Coordinator of Medical Education and Professional Development, Richmond Mental Health Services Andre Kushniruk, Associate Professor and Director, School of Health Information Science at the University of Victoria

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Francis Lau, Associate Professor and Graduate Advisor, School of Health Information Science, University of Victoria Malcolm Maclure, Adjunct Professor, School of Health Information Science, University of Victoria Manager of Research, Pharmaceutical Services Division, B.C. Ministry of Health Raymond Ng, Professor, Department of Computer Science, UBC Anne Nguyen, Director, Evaluation Drug Use Optimization, Pharmaceutical Services Division, BC Ministry of Health Helen Novak Lauscher, Assistant Director of Research, eHealth Strategy Office, UBC Richard Scott, Associate Professor, Global eHealth Research and Training Program, Centre for Innovation in Health Technology, University of Calgary Robert Woollard, Professor, Department of Family Practice, UBC

Coordinator Jennifer Cordeiro, Research Coordinator TEKTIC and Technology Portfolio, eHealth Strategy Office, UBC

Co-Investigators Elizabeth Borycki, Assistant Professor, School of Health Information Science, University of Victoria Elaine Chong, Acting Director, Evaluation Drug Use Optimization, Pharmaceutical Services Division, BC Ministry of Health Celine Cressman, CIHR Fellow in Public Health Policy, University of Toronto Yolanda Liman, Research Coordinator- Aboriginal Portfolio, eHealth Strategy Office, UBC Brenna Lynn, Director, Continuing Professional Development, Faculty of Medicine, UBC

Cameron Norman, Assistant Professor, Dalla Lana School of Public Health, University of Toronto Director of Evaluation, Peter A. Silverman Global eHealth Program Elizabeth Stacy, Research Coordinator Language & Community Engagement Portfolio, eHealth Strategy Office, UBC

Affiliate Members Liz Harrison, Professor and Associate Dean, Physical Therapy and Interprofessional Health Sciences Education, College of Medicine, University of Saskatchewan Grace Mickelson, Corporate Director - Academic Development, Provincial Health Services Authority (PHSA), B.C. Richard Smith, Professor, School of Communication, SFU

Student Affiliate Members Francisco Grajales III, Graduate Student Researchers, UBC Varun Ramraj, Graduate Student Researchers, UBC

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TEKTIC Workshop Agenda

Using Information and Communication Technologies for “Healthy” Public Engagement Thursday September 10th, 2009 Time*

Activity

7:45-8:15

Registration and Breakfast

8:15-8:20

Opening Remarks: Dr. Kendall Ho and Dr. Alison Buchan, UBC Faculty of Medicine

8:20-8:30

Achieving Optimal Public Engagement in Health - The Health Consumer Perspective: Ms. Mary Martin, City of Surrey Counsil

8:30-10:00

Panel Session #1: Engaging Health Consumers and Patients: What’s happening today (Facilitated by Dr. Kendall Ho)

8:30-8:45

Speaker #1 Dr. Antoine Geissbuhler Health on the Net (via WebEx)

8:45-9:00

Speaker #2 Dr. Cameron Norman Using the Internet for Health Promotion in Youth (via WebEx)

9:00-9:15

Speaker #3 Dr. Gerri Sinclair Digital Media and Public Engagement: Opportunities in Health Applications (via WebEx)

9:15-9:30

Speaker #4 Telus New Health Applications on the Horizon

9:30-10:00

Question and Answer Period

10:00 - 10:15 10:15 - 11:00

Break Panel Session #2: TEKTIC Patient Engagement Projects (Facilitated by Dr. Richard Scott)

10:15-10:30

TEKTIC Project #1 Dr. Michal Fedeles & Ms. Katherine Wisener Engaging Patients and the Community: (e)Literacy for Better Health

10:30-10:45

TEKTIC Project #2 Dr. Sandra Jarvis Selinger Community Learning Centres

10:45-11:00

TEKTIC Project #3 Dr. Kendall Ho & Dr. Helen Novak Lauscher Public Engagement with Multicultural Communities via Multimedia Centres

11:00 - 11:45

Facilitated Discussion: Patient Engagement and Collaboration (Facilitated by Dr. Richard Scott)

11:45 - 12:15

Summary and Closing Remarks: Dr. Kendall Ho

12:15 - 1:15

Lunch and Networking

Illustrations and Layout by Nelson Shen