Morna Chua
In Kota Kinabalu, Palliative care is provided by the Palliative Care Unit of Queen Elizabeth Hospital and the Home Care Program of the Palliative Care Association.
Associated with more indicated preventive care, better identification of patients’ psychosocial problems, fewer emergency hospitalizations, fewer hospitalizations in general, shorter lengths of stay, better compliance with appointments and taking of medications, and more timely care for problems.
Seamless care is a client-oriented system composed of both services and integrating mechanisms that guides and tracks patients over time through a comprehensive array of health, mental health, and social services spanning all levels of intensity of care.
Aim : To bring the hospital to the home of the patient
An Inpatient Service
Clinic
Home care program
Daycare Service B
t F ll
INPATIENT SERVICE
- 4 beds 1996 - 10 beds 2001 - 12 beds
The active total care of patients whose
1995
Presently still catering for patients with advanced incurable cancer
The goal of palliative care is the achievement of the best quality of life for the patients and their families .
.
disease is not responsive to curative treatment . Control of pain & other symptoms of psychological, social and spiritual problems is paramount .
To provide a place of rest and to improve the quality of life for advanced cancer patients
1.
Provide good pain & symptom control
3. To provide respite for the primary carer and the family
2. Providing information and explore concerns/issues
4. Empowering primary carer
Patient area Kaunter
Entrance to Palliative Care Unit
Lounge
Single room Double bedded room
Prayer room Pain control Symptom control Radiotherapy Chemotherapy Respite Psychological support Final hours
Caring in our service is holistic PCU facilitate direct admission 24 hour service respect
touch of love
for
Religious beliefs Specialized and individualized care
2 sessions held weekly New referrals Follow up Topping up of medications
Non governmental charitable organisation providing free service
HOMECARE PROGRAM
Covers
a radius of 30km of PCA building
Must
carer
have a primary
Home Visit
Provides medical aids on free loan basis
Some of the areas visited by our home care team Patients registered with PCU may gain direct admission to the ward when needed. But, the ward need to be informed. (all patients registered with PCU will have phone contact of the unit)
A referral form with detailed information will be filled up and sent to PCA .
Always try to introduce home care nurse to patient before patient is discharged
Patients from the districts are referred back to their respective district hospitals Referral back to the hospital with the treatment ordered for symptom control and to contact PCU when the need arises.
Report of incoming calls and patients under the home care program will be informed to the PCA team every working morning.
PCA team reports back to PCU everyday after their home visits. (Fax machine provided by PCA)
Home care team can liaise directly with PCU staff on any problems encountered by patients at home. PCU staff can contact the Home care team when patient or family members call up in case of any problems
Patients stay in hospital is short as they are discharged after symptoms are controlled. They are given the reassurance that the home care team will be following up them and they may be admitted directly to the inpatient unit when needed.
Care is provided for not just the patient but the family as a whole; psychological issues can be the cause of difficult pain control.
Medications of patients
If patient is not ambulant or not able to come for review, medications can be replenished based on the assessment by the home care team.
Weekly case review
This is only possible because of the partnership of the inpatient unit and the home care team working hand in hand.
☺ Easy/direct access to Palliative Care Unit & the Home Care Team
☺ Hospital stay can be reduced thus the cost too.
☺ Logistic problem – with the help of the home care program, patient can now be adequately cared for at home especially when their condition deteriorates.
☺ Family members are able to cope better when they are taught how to take care of their loved one and reinforced by the home care team.
Symptom controlled in PCU Follow-up by home care
Patient can still be cared for at his own environment and be with his/her loved ones.
DAYCARE CENTRE
Difficulties Encountered
Communication
Policy of hospital
Increase workload
Expectations
Problem in sustaining trained staff
Patients are cared for by Palliative Care team till they ‘rest in peace’ With good teamwork, everything is made possible.
BEREAVEMENT FOLLOW-UP
Teambuilding