Non-profit Resource Guide

1Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi

Terry Wasserman Resource Guide for Non Profit Organization The resource is in partial fulfillment of the requirements for ILS 504 Reference Materials and Services, Spring 2009 Prof. Okobi

2Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi

Table of Contents

Preface...............................................................................................................pg. 3 Section 1: An Introduction to Basic HIV/AIDS Information Sources...............pgs. 4-5 Section 2: Supporting Government and Non-Government Agencies................pgs. 6-7 Section 3: Potential Funding Sources, including Application Information.......pgs. 8-10 Section 4: Grant-Writing Resources.....................................................................pgs. 11-12 Section 5: Examples of Organizations involved in Similar Activities................pgs. 13-15 Section 6: Relevant Websites...................................................................................pgs. 16

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Preface This resource guide is being compiled and produced by the special librarian at an organization involved in HIV/AIDS awareness and prevention work. This non-profit has decided to work with a sister organization in Africa (the exact location is unspecified). They have little or no resources to support their work. They need to solicit funds to support their work; in addition to basic information on HIV/AIDS issues they need information on funding sources for international HIV/AIDS prevention and awareness. Each resource promoted in this resource guide has been vetted according to standard reference procedures: the scope, format, publisher, currency, arrangement and information have all been deemed to meet or exceed basic reference criteria. It is the assumption of the librarian that the US non-profit will be soliciting and applying for the funds that will then be directed to Africa. All of the grants, foundations and charities listed below have been chosen because this nonprofit is eligible and has similar goals and aims to these grant-makers. All of the references are given as hyperlinks within the text of the document.

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1. Basic HIV/AIDS Information Sources

What is AIDS? AIDS is acquired immunodeficiency syndrome. It is the most advanced stage of infection with HIV, the human immunodeficiency virus. HIV is a virus that severely damages or kills the cells of a person's immune system, thereby rendering it less effective or eventually entirely ineffectual. For more information see the Medline Plus entry on AIDS.

Who contracts HIV? HIV is contracted by an exchange of bodily fluid with an HIV-positive person; specifically, blood, vaginal fluid, semen or breast milk can carry the disease. For further information see this fact sheet from AIDS infonet.

How can AIDS be prevented? The best way to stop AIDS from spreading is to be aware of how it spreads, via bodily fluid, and to avoid such contact either through the use of protection or abstinence. However, there are many ways of getting this message across and of assisting at-risk individuals-- for more information on prevention please see this AIDS Council webpage.

What treatments are being used on HIV-positive patients? There is no cure for HIV or AIDS. However, HIV-positive patients are living longer, more active lives with new medications and therapies. For further information, please see the following site on antiretroviral therapies: AIDS InfoNet. Other good sources on treatments include this Johns Hopkins

5Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi HIV/AIDS treatment pocket guide. The FDA also has a very good page on treatments for HIV/AIDS; for that, see HIV/AIDS therapeutics.

Other basic information: Good sources for statistical information on AIDS are the following: •The Detroit Community Library. This is a website full of useful information on HIV/AIDS, particularly for those living in the Detroit area-- it includes many relevant metropolitan sites. •The Body. This is a website that gathers together articles from a variety of reliable sources including the San Francisco AIDS Foundation, UNAIDS and Lambda Legal. In addition to the articles, the website also includes useful basic information. •The CDC HIV/AIDS Fact Sheet. This page has many useful fact sheets with a great deal of statistical information, including HIV-positive populations within the United States. There is also a good deal of basic information included elsewhere at The CDC .

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2. Government and Non-government Agencies

Government Agencies

Two government agencies which have already been noted above are The CDC and the National Institutes of Health (NIH-- Medline is an NIH service). In addition there are many other government agencies that deal with AIDS awareness and prevention, including:

•New York City Department of Health and Mental Hygiene has a good deal of information on HIV/AIDS and information on what the city is doing to fight it. At the moment, a bill is up to reduce the cost of testing for those who can't afford it, and there is an initiative to provide free condoms. •Washington, D.C. Department of Health (DOH) provides prevention and care services with community partners to local residents. •USAID is a U.S. Government agency that promotes HIV/AIDS awareness internationally and has given over $7 billion in assistance. •The United States President's Emergency Plan for AIDS Relief combats global HIV/AIDS by bringing awareness and prevention techniques around the world, funding treatments and care for those already affected and helping to prevent further spread of the disease. It is the largest effort of its kind by any nation. •AIDS.gov is a government organization that provides information on AIDS awareness, testing, prevention, treatment and the government's response to the crisis. •The U.S. Department of Health and Human Services, Health Resources and Services Administration provides information about the history of HIV/AIDS, guidelines for care and the types of programs

7Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi they run.

Non-government Agencies •International HIV/AIDS Alliance supports communities in their attempts to reduce the spread of AIDS and deal with the challenges presented by the disease. •Dignitas is an international aid organization that assists resource-limited populations in obtaining HIV/AIDS care and treatment. Dignitas teaches AIDS awareness and prevention-- this agency was started by two doctors from Médecins Sans Frontières. •The Red Cross/Crescent (IFRC) is also fighting this worldwide epidemic through preventive literature and teaching as well as testing, treatment and care. IFRC is also trying to lessen the stigma encountered by those suffering from the disease. •The World Health Organization (WHO) provides support to WHO member states in order for them to provide prevention, testing, treatment and a sustainable response to the ongoing epidemic. •The International AIDS Society, which holds annual conferences on HIV/AIDS research and gives scholarships towards AIDS research.

3. Funding Sources and How to Apply

8Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi Before we get to the question of specific grant-makers, it is important to note that the best way to find out about grants generally is to go to Foundation Directory Online, which can be accessed for free from their library centers or from any library that pays for the service (like the New York Public Library). Foundation Finder is also a useful service, and free from anywhere, but does not have the search capacity that the Foundation Directory does-- it only allows searches via the grant-maker's name, a geographical location or an EIN. The best resource for grants offered by the government is U.S. Government grants.

•Africa Bridge is a foundation that supports international development and has a particular interest in both Africa and AIDS. In the most recent fiscal year on record, this foundation donated over $95,000 in grant money. To apply, visit the Abbott Fund website and under the Global AIDS description, click the link for apply. Applications must be completed online. •Project Open Hand, which is supported by Amgen, gave $20,000 in the last fiscal year on record. This charity is especially interested in Africa and AIDS and accepts applications. An organization can only receive one contribution per year and must provide the following information to [email protected] :

1.Role played by volunteers. 2.Timetable for implementation and evaluation of project 1. How project will be sustained once grant-maker support is completed 2. Results expected from proposed grant 3. Qualifications of key personnel 4. Statement of problem project will address 5. Population served 6. Name, address and phone number of organization 7. Copy of IRS Determination Letter 8. Brief history of organization and description of its mission 9. Geographic area to be served 10.Copy of most recent annual report/audited financial statement/990

9Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi 11.How project's results will be evaluated or measured 12.Explanation of why grant-maker is considered an appropriate donor for project 13.Listing of board of directors, trustees, officers and other key people and their affiliations 14.Detailed description of project and amount of funding requested 15.Contact person 16.Copy of current year's organizational budget and/or project budget 17.Listing of additional sources and amount of support

•Transatlantic Partners Against AIDS, a non-profit attached to Bristol-Myers Squibb Foundation, gave over $75,000 in grants during the last fiscal year on record and also describes itself as interested in African AIDS prevention. In order to apply, applicants must submit the following information to John L. Damonti, 345 Park Ave., 3rd Fl., New York, NY 10154-0004 (Telephone: (212) 546-4000): 1.Population Served. 2.Brief history of organization and description of its mission 3.Geographic area to be served 4.How project's results will be evaluated or measured 5.Listing of board of directors, trustees, officers and other key people and their affiliations 6.Detailed description of project and amount of funding requested 7.Copy of current year's organizational budget and/or project budget 8.Listing of additional sources and amount of support

•Mother to Mother (M2M) is another grant-maker interested in HIV/AIDS prevention in Africa. In the last fiscal year on record, M2M gave $50,000. In order to apply, the applicant must submit the following information (but no application is necessary) to [email protected]: 1.Statement of problem project will address. 2.Copy of IRS Determination Letter 3.How project's results will be evaluated or measured 4.Listing of board of directors, trustees, officers and other key people and their affiliations 5.Detailed description of project and amount of funding requested 6.Copy of current year's organizational budget and/or project budget 7.Listing of additional sources and amount of support

•African AIDS Research Network is a Ford Foundation grant-maker. In the last fiscal year on record,

10Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi this charity donated $150,000 to AIDS research and prevention in Africa. There is no application process, rather certain information must be submitted, preferably via e-mail to [email protected]. 1. 2. 3. 4. 5.

Timetable for implementation and evaluation of project Qualifications of key personnel Statement of problem project will address Brief history of organization and description of its mission Detailed description of project and amount of funding requested

•Global Fund to Fight AIDS, Tuberculosis and Malaria is a Bill and Melinda Gates Foundation grantmaker. This particular fund has a special interest in Africa and AIDS prevention and donated $945,000 to the cause in the last fiscal year on record. Applications are not required, but applicants should provide a two page letter of inquiry and a copy of IRS determination letter to [email protected].

In addition to the aforementioned grants, there are both government and private grants that are location-specific-- the federal government is awarding grants to non-profits to stop the spread of AIDS in Botswana, Mali, South Africa, Sudan, Tanzania and other African nations. In order to apply for these grants, a non-profit would have to have a country-specific plan to present.

4. Grant Writing Resources

11Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi Though few of the grants noted above require lengthy applications, most of the federal (location-specific) grants do. Grant writing is a skill unto itself, and the following websites will assist non-profit employees who are new to the process.

•Non-Profit Guides is a volunteer-driven website devoted to helping non-profit groups engage in and maneuver through the grant-writing process. It is geared towards US-based non-profits and walks users through a preliminary or inquiry letter and then a full proposal and includes sample full proposals. Some guidelines include making sure of eligibility and grant-maker's goals before applying, showing significant need for the proposed solution and clearly and concisely stating objectives and goals.

•Minnesota Council of Foundations is another excellent source for grant-writing guidance. Written by a non-profit management consultant, this text helpfully admits that most grants require the same information, if in a different order, and outlines the types of information and useful specifics to include. The following topics are covered here: organization information, need description, work plan, outcomes, other funding, future funding, evaluations, budget, supplementary materials, putting it all together and variations of grants.

•The Free Management Library offers advice on non-profit fundraising and grant-writing, as well as a number of links to other useful websites (though some of these links lead to pages that no longer exist). There are links to information on asking for money, proposal vs. grant writing, proposal writing, fundraising on the Internet and more.

•The National Institutes of Health offers a website on grants-process overviews with information about

12Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi grants, how to choose grants, preparing to write the applications and grant writing. This page also provides links to how to apply for NIH grants and how the peer review process works. Though this information is all specific to NIH grants, it can really be used more generally for all federal grants.

5. Organizations Involved in Similar Activities

Providing AIDS awareness and prevention is a widely-acknowledged social need and as such

13Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi there are a number of organizations that offer such services.

General AIDS non-profits in the U.S. •The HIV/AIDS Prevention Group is a local non-profit that grew organically with the need for community support for at-risk as well as HIV positive residents. They began by providing HIV/AIDS prevention programming and now offer a wellness clinic, support groups, charity for children orphaned by AIDS and training for other communities to set up there own local AIDS awareness organizations. •The AIDS Portal is an umbrella organization supporting AIDS related issues-- their goal is to facilitate networking amongst organizations to more efficiently respond to the global problem of HIV/AIDS. The AIDS Portal pushes for more open dialogue within communities about AIDS, supports existing organizational networks and provides easy access to information about HIV/AIDS. •The MidWest AIDS Council (MAC) is a local organization that works closely with the Michigan Department of Community Health to provide AIDS prevention workshops, training, outreach events, presentations and educational materials to the community.

Specific AIDS non-profits in the U.S.

The more traditional approach of community-based services has been complemented by populationrelated AIDS programs. •The Gay Men's Health Crisis (GMHC) is one of the best-known non-profit AIDS awareness organizations in the U.S. GMHC provides prevention and care services to over 15,000 at-risk and HIV positive individuals as well as being a well-respected advocate for scientific solutions. •The African American Coalition Against AIDS specifically provides AIDS awareness and assistance to African-American neighbourhoods and communities that have been particularly impacted by the

14Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi spread of HIV/AIDS. Their activities include outreach work in susceptible areas, educational tables at large communal events and partnering with local businesses to distribute AIDS awareness materials. •The Well Project was created as a resource for women who are affected by AIDS and targets their programming expressly to women who are at-risk for AIDS. The non-profit is trying to stem the spread of AIDS by concentrating uniquely on women-- educating women and their care-givers on AIDS prevention, AIDS treatments and the newest resources for women living with the disease.

Non-Profits Assisting African AIDS Awareness

•Hope Through Health (HTH) is a non-profit that is committed to assisting Africans effectively deal with AIDS, poverty and basic infrastructure problems. The organization does this through grass-roots activism in local affected areas. HTH partners with community groups to help provide education, medicine and spiritual/emotional well-being in an attempt to improve both health and hope. •AIDS Healthcare Foundation is a LA-based non-profit that provides global education, advocacy and medicine to over 70,000 people in 22 nations. It receives outside funding as well as support from its pharmacies, thrifts stores and healthcare contracts. Currently it is engaged in a large-scale testing project, hoping to identify some projected 25 million HIV positive individuals who are unaware of their status and as such are not yet being treated.

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6. Relevant Websites The following websites will be useful for those seeking more information about AIDS awareness and the roles a non-profit can play in preventing and eliminating the disease. •AMSA is an organization of medical students who assist health care worldwide. •CARE is an organization that began after World War II to assist survivors and has continued their charitable work, focusing on mothers and children. •Catholic Relief Services is a faith-based organization that provides AIDS relief by sending workers to devastated areas and funding local organizations in their fight against AIDS. •The Elizabeth Glaser Pediatric AIDS Foundation is dedicated to eradicating the disease in the next

16Wasserman Resource Guide for Non Profit ILS 504 Spr.09 Okobi generation-- they provide information and treatment for children affected by the disease, as well as research grants for those hoping to cure it. •Mercy Corps (MC) is a non-profit that works around the world addressing the suffering and ills of humanity, including AIDS awareness and prevention. MC works with partners in Africa, as well as elsewhere, to encourage healthy and safe residents and environments. •The Nineveh Project is a faith-based organization that supports and cares for HIV positive patients in Nigeria. •Street Corner Foundation is a non-profit organization aiming to provide AIDS awareness information to at-risk residents of poorer neighborhoods. •World Vision is a faith-based charity that provides focuses their AIDS resources on orphaned children and children who are HIV positive.